Les Halles de Lyon – Paul Bocuse

Our next stop would be the famous Les Halles de Lyon – the food market.

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Les Halles de Lyon – Paul Bocuse ..markets…nothing to impressive outside.wait till your inside.

In 1859 Lyon  opened its doors to its first food market in a large metallic structure located at Place Cordeliers in the centre of the city known as the “Presqu’ile”.  100 years later they built a new market to represent their love of food.

 

In 1971 Les Halles opened its door in the area of La Part-Dieu close to Lyons main train station. It is over 3 floors now however we only went through the ground floor. Paul Bocuse added his name to the market.

Over 48 vendors, butchers, bakers, wine merchants, cheesemonger, poultry.  If you eat it you will find at the market.

Of course what market would it be if there were no samples of food.  We all assembled at the back of the market for a our own special tasting.  It was cordoned off however quite a few French folk tried to join in.  They love free food and who wouldn’t.   In France you don’t taste wonderful food without the glass of wine or 2 or 3.  Or more….

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Our sample’s table

 

We tasted nose to tail pork with aromatic herbs that made your taste buds tingle with delight and wanting more.

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Muriel sampling the wine and food
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Nose to tail samples
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Omgoodness so yummy

We were then given some time to wander around the markets. So much beautiful produce.  The displays are sensational. I think our markets here in Australia should take a note or two from the French markets.

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Pate Croute – all different kinds…

The famous Bresse Chickens – white chickens  only raised within a defined area of Bresse in Eastern France.  They are sold intact …heads and all…see the pictures.  They also have slate blue legs.

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Famous Bresse chickens

Wine…so much wine…rows and rows of bottles.

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French Wine

Cheese oh my you name it its there.

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Cheese

Cakes – I think the pictures will do the talking here.

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How cute is this cake
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more macaroons

 

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more macaroons

Chocolate – rows and rows of this amazing stuff.

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Chocolate 

I think I put on a few kg’s just looking at the most wonderful display of patisseries. Can you believe that I didn’t have at least one patisserie.

I did however purchase some chocolate lipstick!  Which I still have. Yes surprise surprise!

 

We survived the market somehow we managed to get back on the coach and taken into the main part of the city.  The wheels on the bus kept going round, lucky, for all the food we ate it was surprising they didn’t go flat lol.

 

Coming up next  – our afternoon in Lyon.

 

More pics on Instagram…

 

 

 

 

 

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Lam Awareness

The month of June is coming to a close.  June is Lam Awareness month.  Sarah from https://www.travelbreatherepeat.com has done an amazing awareness program each year for the month of June.  Below is my piece this year.  Do go over to her blog and check them out.

 

https://www.travelbreatherepeat.com/physical-therapy-with-lam/

 

Thank you for reading and following.

 

 

 

 

 

Leave Me A Link and I’ll Share Your Page!!

What a great way to meet other bloggers

Dream Big, Dream Often

As most of my followers know I am big into helping other bloggers gain more exposure. My goal has been to grow a community of like-minded people and I am part way to my goal.  I am bringing back the open call to leave a link and I’ll share it for you!!

To get a reblog you must do the following:

  1. leave me a link to your page, and
  2. Share this post with your followers.

Each day I’ll randomly select 3 links to reblog.  I’m not sure it gets much simpler.  You can leave as many links as you want and I’ll cycle this post from day-to-day so more people can jump on board.

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Fitzroy Gardens and the MCG Melbourne.

On Saturday I made my way into the city to catch up with a friend who was visiting from Perth, Western Australia. Such a bleak cold Saturday so what does one do apart from staying indoors and keeping warm.

We got on a tram and made our way to the MCG – Melbourne Cricket Ground.  My friend Gina had only been past the ground via a train.  So a walk around the outside.  No AFL games were being played this day so it was very quiet.

The MCG is home to AFL Football and many clubs based in Melbourne this is their home ground.  MCG is also home to the MCC – Melbourne Cricket Club.  It was founded in 1838 and is one of the oldest sporting clubs in Australia.

In 1859 the members drafted the first rules of Australian football. In 1877 it hosted the first Test Cricket played between England and Australia.

Around the grounds are statues of famous sports people.  The opening ceremony of the 1956 Olympics were held at the MCG.

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1956 Olympics Melbourne MCG
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Aussie Rules / MCG

We then made our way up the hill to the Fitzroy Gardens.  The gardens were named after  Sir Charles Augustus Fitzroy  (1796-1858).  He was the Governor of New South Wales (1846-1851) and Governor General of the Australian Colonies (1851-1855).

The gardens have a history of over 150 years and is visited by over 2 million people every year.  It’s very easy to get to you can catch a tram or tram or just walk.

We walked down a tree-lined pathway to the Fairies Tree. Ola Cohn’s Fairies Tree – has carvings on the stump of one of the Red Gum trees and its over 300 years old.

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Fairy Tree

 

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Fairy Tree

 

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Fairy Tree

From 1931 to May 1934 – Victoria’s Centenary Year – Miss Cohn worked on the delightful likenesses of fairies, dwarfs, gnomes, a marvelous jackass, koalas, flying foxes and a host of typical Australian animals and birds. She used all the natural irregularities and curves to transform the tree trunk into a thing of beauty.

Opposite the Fairy Tree is a Tudor Village.  This was modelled in cement by Mr. Edgar Wilson, a 77-year-old pensioner who lived in Hamilton Road, Norwood, London, England.  The model buildings represent a typical Kentish village built during the “Tudor” period of English history. The village is composed of various thatched cottages, a village church, school, hotel, barns, stocks, pump, and all public buildings which make up one of the delightful villages. Also included is a scale model of Shakespeare’s home and Anne Hathaway’s cottage.

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Tudor Village

 

Tudor Village

It was bitterly cold on this day.  The wind was coming straight off the antarctic I’m sure.  Time for a coffee and maybe a bite to eat. We found KereKere pronounced Kerry Kerry named after the Fijian custom of  which a relative or friend can request something that is needed and must be willing given with no expectation of repayment.  When we ordered our coffee and let me tell you this coffee was amazing, served in beautiful large and wide glasses we were also given a large playing card.  We found out that each month they have a community event.  On a board they list 4 different events and the one with the most votes is the one they will do.  To cast your vote, you place you playing card in the box of the event you think should be done.  I can’t remember all them but I voted on a local artist coming to the cafe and doing some painting. What a wonderful idea I thought.

Once we had warmed ourselves up on the coffee and took advantage of the  heating we ventured  to the Cooks cottage opposite the cafe.

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Cooks Cottage
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The main room in Cooks Cottage
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The small bedroom downstairs – with the chamber pot

 

 

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The main living room with some of the clothes worn in those days

This is a memorial to Captain James Cook.  He was a British explorer, navigator and captain in the Royal Navy. He was born in November 1728 and died in February 1779. This cottage is said to be where he spent some of his youth.  .  The cottage was transported from England to Australia in 1934.  Its been on the same ground in the Fitzroy Gardens since then.  A typical English garden was built around the cottage. You can try on clothes that would have been warm around the time Captain James Cook was alive.  We chose a typical captains hat.  The cottage is very small.  Has a living area and a small bedroom downstairs.  I didn’t venture up stairs as they were very step and with my walking stick and sore knee I didn’t want to take the chance.  Gina went up and said it had a bedroom which would have been the main bedroom.

 

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My photo with the statue of Captain James Cook – I think I need new finger-less gloves

 

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Gina with Captain James Cook Statue

As we were leaving Fitzroy Gardens we passed the Conservatory.  We didn’t go inside this day but I have in the past and its filled with the most amazing plants and flowers.

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The Conservatory in Fitzroy Gardens

 

We then  made our way through the  Treasury Gardens and up to the old Treasury Building at the top of Spring St.  Jumped on a tram and the best thing it was in the free zone. Melbourne has made travel in the CBD free travel which is great for tourists and workers.

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Old Treasury Building
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Old Treasury Building
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Melbourne Tram

We went to Gina’s apartment where she grabbed her coat and then back on a tram to Southern Cross Station where we would part ways.  Gina was going to friends for dinner and I was heading home.  What a lovely an inexpensive way to spend some time in Melbourne.

 

Now if you’re visiting Melbourne you can arrange  tours of the MCG and MCC.  I do plan on doing the tour later in the year with one of my friends from the Football cheer squad we are in.  I will do a blog post on it after I have been.

To visit Cooks Cottage, general admission is $6.50, Concession/Seniors is $5.00 and children 3-15 $3.50.  They also have family admission 2 adults and 2 children $18.00.

To get to Fitzroy Gardens you can catch a train to Parliament Station or Jolimont. The Free City Circle Tram line the stop is Spring St Treasury Buildings.  15 minute walk from Federation Square.  Tram’s 48 or 75 the stop would be Wellington Street opposite the park.

 

**All photos taken with my I phone 5S**

 

 

 

 

 

 

The Painted Walls of Lyon – La Fresque Des Lyonnais

After breakfast we boarded our coach to be taken on a tour of Lyon.  Our first point of call was this amazing building.

A mural of over 30 of Lyons famous figures past and present. The Roman emperor Claudius, who was born here when Lyon was the fortress of Roman Gaul; the pioneer filmmaking Lumière brothers; silk weaver and inventor of the Jacquard loom Joseph-Marie Jacquard; author and aviator Antoine de Saint-Exupery and others appear on their balconies by the Saône River. The famous Lyon chef Paul Bocuse stands in the doorway of a typical Lyonnais restaurant, and at one of his tables is crime writer Frédéric Dard.

I think we all took what seemed a million and one photos.

Lyon is famous for its “troupe l’ole” painted walls, and there is nearly one hundred mural frescos painted on frontages of buildings.

I think I will let the pictures do the talking. At first glance when you look at this building it looks busy with people on the balconies, in the shops, people walking past.  It’s all just one giant fresco.

If you are visiting Lyon here is the address for this particular building.

angle 49 quai St Vincent et 2 rue de la Martinière – 69001 Lyon 1er

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La Fresque Des Lyonnais
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Famous People on the building
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Lyon wall painting
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Lyon Wall painting
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Lyon Wall Painting
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Murals of famous Lyon people
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Mural of famous lyon people
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Paul Boscue
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Murals of famous Lyon people –  Auguste and Louis Lumière.
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Murals of famous Lyon people
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Murals of famous Lyon people

 

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The famous 18th century tooth puller Laurent Mourguet – he created a puppet show to distract his patients. The puppet was called  Guigno. Can you see him? The one with no balcony

 

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Bookstore ….

 

 

Next post the famous Les Halles de Lyon – Paul  Bocuse!

The lights of Lyon on the Saone and the Rhine

 

After dinner at Abbaye of Collonges we made our way across the road to our ship to be taken into Lyon.  We were to arrive in Lyon around midnight so quite a few of us with drinks in hand stood on the front deck to watch the lights as we meandered to out stop.

Lyon is the third largest city in France and the centre of the second largest metropolitan area in the country.  It is the capital of the Rhône-Alpes region.  It is on the banks of the Saone and the Rhone.

As we made our way to our port you could be mistaken ever so slightly that you were in Paris.  On our left on the hill was a replica of the Eiffel Tower.  It is called  Tour métallique de Fourvière (“Metallic tower of Fourvière a landmark of Lyon.  It was built between 1892 and 1894.  Back in 1914 it had a restaurant and an elevator that could take up to 22 people to the summit.  Today it is used as a television tower and is not accessible to the public.

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Lyon – Metallic tower of Fourvière  with the Basilica of Notre-Dame in the background.
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Love how all the colors reflect on the water
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The lights on the bridge 
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another view of the banks of the river in Lyon
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The lights of Lyon
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The lights on the murals of Lyon

 

Once our ship had docked we made our way back to our rooms for some shut-eye.

There were two tours on offer the next day, a Lyon city tour with Silk Workshop and Lyon Culinary sightseeing tour.  Both Muriel and I had decided to go on the Culinary sightseeing tour.  More of Lyon on the next post.

 

 

 

 

 

 

World Wide Lam Awareness Month

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Can you say Lymphangioleiomyomatosis?

Let me break it down for you – Lymp -angio -leio- myo -ma – tosis.  What a mouth full.  Us Lammies and the medical profession call it Lam.  So much easier don’t you think!

What is Lam  or Lymphangioleomyomatosis you ask?  Here is the link to the Australian Lam organisation.

http://lamaustralia.org.au/what-is-lam/

“Lymphangioleiomyomatosis is commonly referred to simply as LAM. It is a rare lung disease affecting women.

Caused by a single cell malfunction, the disease process replaces the lung lining with smooth muscle cells. This change progressively reduces the uptake of oxygen into the bloodstream, causing breathlessness, especially on exertion, and other diverse symptoms. These usually appear when women are in their childbearing years.  Because LAM is so unusual, many doctors are unfamiliar with the disease. It’s not unusual for LAM to be misdiagnosed initially as asthma, bronchitis, emphysema or depression.

There are 2 types of Lam.  Sporadic Lam – is not inherited . Caused by a random gene mutation and affects mostly women.

TS/Lam – is associated with Tuberous Sclerosis and is heredity. It is slower to progress than the sporadic Lam and less  debilitating than sporadic Lam.”

 

When my girls were little I began to experience mild asthma.  My doctor advised me to use an inhaler only when i truly needed it.  I was told I had bronchitis or bronchial/asthma.

Winter would be the worst season for me.  I would go a couple of years and be ok only to get so sick it would go from a chest infection to pneumonia. Still I was told it’s the flu season/winter/bronchitis.

If it wasn’t for a friend I met on a Thyroid Facebook group who was trying to find out what her COPD was, I would still be none the wiser.  She had looked up her symptoms on the internet and it came up with Lam and Tuberous Sclerosis.  She had emailed the Professor at the Alfred Hospital in the respiratory department regarding her symptoms and he advised her it wasn’t Lam.  However, she let me know his details and I thought ok I will email him.  Within a couple of hours he had emailed me back to tell me to get to my GP and ask him for a high frequency CT Scan.  I was still in denial and my thinking was why didn’t one of my doctors mention this to me before, especially when they knew of my TS involvement and my “asthma bronchitis”.

So off I trudge to see my doctor who organized  the  test however he was pretty sure I didn’t have it.  He was also of the same mind as me  that surely in the past a doctor  or specialist would have diagnosed it.

I still remember that day in March 2013, when I went back to get the results.  He called me in to his office and I sat there happy in my mind he was going to say “no your clear you do not have Lam.  Instead he sat there and said  “its positive” I felt like the rug had been pulled out from under me.  Everywhere I read on the internet was that it was a 10 year death sentence from diagnosis. I felt numb. My doctor immediately wrote a referral to the professor at the Alfred Hospital.

I searched Facebook for groups for people with Lam. I wanted to know I was going to be ok.  In those early days I was scared but didn’t tell anyone of my fears.  I didn’t tell my work mates or some of my family.  If I  was scared, then I didnt want them to be scared. I wanted to find out more before I told anyone.

I found out from one group that there was an Australian Lam group.  I joined and found such amazing wonderful caring ladies.  One of the ladies rang me and we chatted for a while.  Certainly put my overworked brain at ease.  I was told there was a clinic the following month for the Lam ladies and to see if I could get into it.  I rang the hospital and was told yes I could attend.  These clinics are every 6 months and most of the ladies meet for lunch after the clinic at one of their homes

That day of the clinic was scary.  I was in the waiting room with all these other Ladies who also had Lam.  Most had  Sporadic Lam but there were a couple of ladies who were just like me, TS/Lam.

I had a walking test, I had to walk for 6 minutes and they checked my time (I don’t think I won any gold medals for the walk) and then I had a lung function test.  Also a blood test.  This is to check the oxygen in the blood. Then I went into to see the Lung specialist.  I was terrified, I had no idea what was next.   The Lung specialist showed  me my lung pictures and you could see little white dots all over the lungs.  Lucky for me it was mild.

That first lunch was the start of some wonderful friendships.  I realized that there is life after a diagnosis of Lam.  I was inspired by these ladies.  Some had been diagnosed for years yet they were living their life.  A few are on the new drug Rapamycin or Sirolimus. This drug has been a life saver for many who have Lam.  It was first found on Easter Island  in soil bacteria.  The drugs name came from the islands native name Rapu Nui.  It is a naturally derived antibiotic, anti fungal and immunosuppressant.

Since my diagnosis, I have a preventative I use every morning and night.  I have had a couple of times where I have had to take extra medications.

I have also started taking Affintor or  Everolimus a mTor inhibitors to help with the angiomyiopalomas on my kidneys.  This hopefully over time will reduce them and also help with the lungs and the facial  Angiofibromas that I have over my nose and cheeks.  I was using the Topical Cream and it certainly helped reduce the redness and the “lumps”.

 

Since my diagnosis, I have a preventative I use every morning and night.  I have had a couple of times where I have had to take extra medications. One time  was really scary and my doctor was going to admit me into hospital to have antibiotics via intravenous drip.  I attended a lam clinic during this and was put on stronger antibiotics, stronger preventive and  Prednisolone  I had to attend the clinic every 6 weeks until they could see an improvement then 3 monthly, then back to 6 monthly.  The hospital doctor also sent a letter to my GP advising that when I get a chest infection to treat it as if its pneumonia.

If the weather is really windy I stay indoors as this can affect the lungs. If I do need to go out I wear beanies, gloves and scarfs.

When  I go shopping or walking the dogs, I always take a puffer with me.  When I travel I take with me antibiotics, Prednisolone and extra inhalers. It’s always better to be safe than sorry.

I count my lucky stars every day.  Lucky for me that this rare disease  is mild. Some are not so lucky.  In the 5 years that I have been diagnosed quite a few women have passed away from this disease.  Their condition so severe that they die waiting for a lung transplant.

*x-rays do not pick up this condition* 

In Australia there are  approximately  104 women diagnosed with Lam, these  figures are from 2015.  There are probably many others, however they have been misdiagnosed with other lung conditions such as Asthma.

“Facts about LAM

  • LAM is not caused by lifestyle choices
  • LAM is not contagious
  • LAM develops after puberty and appears to be accelerated by the hormone oestrogen
  • Pregnancy and hormonal medication may affect the progress of LAM
  • Average age of diagnosis is 35 years, but most women notice symptoms long before LAM is diagnosed.”

 

Since I was diagnosed I have been overseas twice.  Once with both my sisters in 2016 and last year with my eldest sister.  I have been to Sydney and Perth a few times.  I have done Tai Chi, doing physiotherapy and hydrotherapy.  I walk my dogs.  I am doing everything I can to stay as healthy as I can.  I have many other chronic illness’s as well as Lam.

 

Thank you so much for reading and learning a little bit more about Lam and a little bit more about me – Bree.

 

 

 

 

 

 

 

 

 

 

Abbaye of Collonges – Paul Bocuse

 

When I heard the news of the passing of Paul Bocuse  back in January, I was deeply saddened.  We had an amazing night of food, fun, laughter and a very good show at the Abbaye of Collonges in August last year.

Paul Bocuse was an amazing French Chef who will always be famous for high quality restaurants and his innovative approaches to cuisine.  He was one of the most prominent chefs associated with nouvelle cuisine, which is less opulent and calorific than traditional ‘cuisine classique”.  He was born in Collonges and it is there you find his famed Michelin starred restaurant.

On the banks of the Saone River, the Abbey of Collonges stands in all its splendor, offering us a unique welcome in a shining setting.  The moment we walked in to hear the sound of the playing of the grand fairground organs, so lovingly restored, we knew we were in for a treat.  The prestigious reputation of the Abbaye de Collonges is not its only asset.  The enthusiasm of its staff always ready to meet our requirements, adds so much more to the whole evening.

Our ship docked right by the Abbaye, it was a short walk across the road and we were in the grounds.

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Of course I always have that trepidation that I won’t be able to get a gluten free meal. It will be a fish meal doused with peanuts and gluten, even though I know that the tour director has advised them of my diet requirements.  APT even provided me with a placard to place on the table to remind the staff.

Should I have been worried?  Shake the head and a big fat NO!…. From the moment I sat down at our table I was looked after.  Even down to the bread roll.  I enjoyed the food so much I didn’t take a picture.  Now thats not like me at all.  Oh well you will have to believe me then.

All around the restaurant are names of outstanding chefs.

The waiters had us in stitches as they literally ran down the stairs with 6 plates or more of food.  One  pretended he was drunk tripping on the stairs, he was not a young waiter either.  If I remember rightly he had 8 plates, 4 on each arm.  Sometimes you go these places and the entertainment is better than the food.  Not at the Abbaye!  The food was amazing and I can see why the Abbaye had continually been awarded a Michelin star for many years running.

What an amazing night of fun and great food.  We had the pleasure of sitting with our friends Tania and Peter and our Captain of the ship Tony and his partner Victoria.

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Peter enjoying the night
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The restored Organ
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Figurines on the organ
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The restored Organ
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The waiters getting our pre dinner drinks
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Such an amazing place
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Muriel and Tania
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Peter, Tania and Muriel
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Peter, Bree (me) and Tania
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The Organ
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a very blurry picture of the statue of Paul Bocuse
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The interior of the restaurant
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The restaurant
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Tania and Victoria – Our Captains partner
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Our Captain  Tony and his partner Victoria

What a wonderful day we had.  Frogs legs, snails and a gastronomical dinner.

Back to the ship for a nightcap and to bed we go.  Next morning we will be in Lyon for more amazing food and sights.

Once on board and a drink in hand we wandered out to the deck to watch the lights of Lyon come into view.   More about that in another post.

Châtillon-sur-Chalaronne

After we had some wine and the frogs legs our guide would be taking us on a walking tour through this delightful town.  We needed to walk off all the wine that comes flowing with these tastings.  Our walk took us around an hour.  We wandered around the little cobblestone streets going through “secrect” walkways that connected each street.  Walls painted with farming scenes, the humble chicken taking pride of place.

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Covered walkways linking the tiny laneways
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Paintings of typical farm life

Chatillon-sur- Charlaronne is a charming Medical town situated on a peaceful river in the heart of the Dombes.  This beautiful village has a 4 flower rating and a winner of the National Floral Grand Prix.  Floral bridges and river banks is a wonderful place to wander for flower lovers of which I definitely am.

  • The market house was replaced in 1440 by cathedral-like halls: 80 m long, 20 m wide and 10 high. The building divided into three spans is supported by enormous pillars of oak on which rests the framework also in oak.
  • Destroyed partly in 1670 by a fire, they will be rebuilt identically thanks to the generosity of Mademoiselle de Montpensier, Countess of Chatillon, who allowed the inhabitants to take the necessary wood in his forest of Tanay.
  • Every Saturday morning, they welcome the market for fresh produce and serve as a refuge for outdoor events surprised by the weather.

The village has timber-framed houses and a 17th century wooden market hall.  It’s so pretty and quaint and yes I will say it again, I would love to stay here for a few days to experience the village life.

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Beautiful Timber framed homes with flowers at every window 

 

The French mostly grow Geraniums at every window as not only do they look pretty they are great insect repellant.

Some refer the town as the “Pink Town” from the color of the bricks used in the buildings.  It’s also referred to as “Little Venice” .

The small medieval town of Châtillon in the Dombes region is still marked today by the trace of humanist Saint Vincent-de-Paul who set up the confraternity the Ladies of Charity (la confrérie des Dames de la Charité) here, and was canonised in 1617.

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Saint Vincent De Paul 1617
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1617 St Vincent De Paul was canonised

As we walked through the town a few things stood out.  So pretty, so clean and so quaint.

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Flowers everywhere.
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15th Century Market Hall

Imagine the hustle and bustle on market day.  Fresh produce from the region, I can almost smell the fresh vegetables, the cheeses, the wine!

 

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The humble Chicken
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Breathtaking beauty
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Flowers on Bridges

The Porte de Villars is part of the fortified walls of Chatillon sur Chalaronne. Built by the Dukes of Savoy, begun in 1273 by Philip I, Count of Savoy, it was completed in 1321 by Ame V, the Grand Duke of Savoy.
The enclosure was pierced only in four places to allow the entry and the exit of Châtillon
Porte de Bourg at the Hotel de La Tour
Porte de Lyon rue Johnson
Useless door rue Barrit 
Gate of Villars
Only the remarkably preserved Porte de Villars remains. Unobstructed from neighboring houses, the Tower looked very beautiful.

(I tried to find information on google regarding the “useless door rue Barrit”  .  I wonder why it was given that name?)

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Port de Villars
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Port de Villars – registered as a historical monument 

 

The convent of the Capuchins was built in 1636-1639, the laying of the first stone took place April 16, 1636. When the Revolution broke out, the church was assigned to meetings of popular assemblies and became the seat of the district in June 1790. An inventory drawn up October 29, 1790 mentions the church, the sacristy, the cloister, the kitchen, the refectory, the expense, the heating room, the winter refectory, another room of expense, the library, several rooms of religious, and two dormitories that can accommodate ten religious. In January 1791, the Capuchins left the convent.  It was sold in 1796.

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The Convent des Capuchins

There is so much to do in this town.

They have a miniature steam train museum.  Unfortunately we only had a little time in the town.  Perhaps next time when I visit.

Now its back to the ship to get ready for a night of more eating and drinking and fun!

 

 

May 15th – TSC Global Awareness Day

Today is May 15th TSC Global Awareness Day…

3 Sisters Abroad

Today is TSC Global Awareness Day.  You might ask what is TSC?  It stands for Tuberous Sclerosis Complex.  Tuberous Sclerosis affects the eyes, skin, brain, kidneys, liver, lungs, and some also have epilepsy.

I have Tuberous Sclerosis Complex and so does my youngest daughter Jennifer. I was officially diagnosed when she was 1. TSC in my case was a mutant gene, however once you have this rare disease the chances of having a child with TSC is 50/50. 1 in 2 chance of having a child with TSC.  I do remember my parents being tested which came up clear.  I am the youngest of 4 so the chance of my sisters or brother having TSC was ruled out when my parents tests came up clear.  This meant something happened with the genes when i was conceived.  When I was 6 or 7 the doctors removed some facial lumps off my…

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